She only got up in a dream-like trance to eat food, drink water, go to the toilet and the back to bed. After being diagnosed with Kleine-Levin Syndrome (KLS); known as Sleeping Beauty syndrome, Beth joined the over 100 young people in Britain suffering from the disease.
The Sleeping Beauty syndrome is still under investigations as scientists have very little knowledge about the disease, except that it targets teenagers, from 16 years, and lasts for around 13 years.
Beth, an intelligent girl who always made excellent results, should have finished university by now and been on her way to becoming a child psychologist, but her sleeping condition has delayed her dreams as she has since dropped out of college to sleep.
Beth spends more time sleeping than being awake and has severally missed important dates in her life, like a few Christmases and her birthdays.
Her mother, Janine, who quit her job long ago to look after her, says that she usually looks forward to her daughter’s ‘wake’ days, when she is able to live a fairly normal life, also stating that Beth usually falls into panic whenever she wakes up to know how much time has gone.
“It is like night and day,’ Janine told Daily Mail. ‘She might wake up tomorrow and then it’s a race against time to live the life she should have had.
“She rushes off to catch up with her friends and get her hair done. But no one knows when she might fall asleep again.”
In the midst of an unstable lifestyle, Beth has managed to find love in the arms of her boyfriend, Dan, a 25-year-old primary school teacher who she met three years ago.
According to Beth’s mum, Dan has been supportive and is one person Beth looks forward to meeting whenever she is awake.